Guest Blogger: Cameron Cyr, Chronic Myelogenious Leukemia Survivor, Leukemia & Lymphoma Society

Hi! My name is Cameron Cyr. I am 10 years old and I am a cancer survivor of Chronic Myelogenious Leukemia. I am honored to be the guest blogger for the Leukemia & Lymphoma Society of Rhode Island. My mom wears Alex and Ani bracelets, but only the ones that are special and meaningful to her. I am sure she will buy this month’s bracelet because without LLS, I may not be alive.

I got diagnosed with Chronic Myelogenous Leukemia (CML) on November 28, 2011, at the age of 8. When my parents told me that I had CML I stuttered. I had no clue what they were talking about until later on.

In school and in the hockey rink and on the baseball field my parents and I noticed that I did not have as much energy as I used to. My grades were still up, but it affected the way I played in both sports. Also, I wasn’t able to do the things that my friends were doing like having sleepovers.

I began taking a medicine called Gleevec and it caused me to have a lot of side effects. What I remember the most is waking up with leg pain around midnight and not falling back to sleep until 3:00 in the morning.

But, thanks to Gleevec, I am in remission. I am back to playing the sports I love: hockey and baseball. I am a HUGE Boston Red Sox and Boston Bruins fan! I am also sleeping over my friends’ houses, going to the beach, swimming, riding ATV’s and having fun. I can be a normal kid again.

Thank you all for buying this month’s Charity By Design bangle and supporting the Leukemia & Lymphoma Society. LLS helped fund the research that came up with my medicine to get and keep me healthy.

Your donations will help to get more research done so one day I may not have to take any medicine at all and one day no 8 year old, or anyone for that matter, will ever get cancer again.

From Cameron’s Parents:

Dear Alex and Ani Charity by Design and Leukemia & Lymphoma Society Supporters: We would like to thank you from the bottom of our hearts for your dedication to helping in the fight against blood cancers.

Our son, Cameron, was chosen to be this year’s Boy of the Year for the Man & Woman of the Year campaign and we could not be more thrilled. We love knowing that Cameron can be an ambassador of cures for LLS.

As Cameron said, he was diagnosed on November 28, 2011, with Chronic Myelogenous Leukemia. The average age of someone with CML is 52 years old. An 8 year old being diagnosed with CML was very rare. There is neither rhyme nor reason for him to have gotten this form of leukemia.

We followed the oncologist’s recommendation and Cameron began his treatment which consisted of taking an oral chemotherapy drug called Gleevec which he would have to take every day for the rest of his life — unless researcher’s discover a shot or something that would keep the Philadelphia chromosome at bay.

Without the support of the Lymphoma & Leukemia Society none of this would have been possible. LLS funded the research that led to Gleevec and today Cameron is in remission and playing hockey, his favorite sport.

Cameron is an incredibly strong young man who does not give up. He is our hero and idol. November 28, 2011, changed our lives forever. We do not take time for granted and enjoy every minute we have with each other.

We thank you for purchasing the Lighthouse bangle and supporting LLS. Who knows, the purchase of YOUR bangle could be the dollars that create a drug to save someone’s life as many donor’s dollars contributed to the drug that saved Cameron’s life.

Thank you doesn’t seem like enough. Wear your bangle with pride and spread the positive energy that Alex and Ani and LLS exude everyday. Wear it knowing you did your part to end blood cancers and helped make someday, today for Cameron and many others like him. With Gratitude, Stephannie & Gregory Cyr.

Written by Cameron Cyr, Chronic Myelogenious Leukemia Survivor on behalf of the Leukemia & Lymphoma Society and his parents Stephannie & Gregory Cyr

_____

For more information on the Lighthouse Bangle click here. To learn more about the Leukemia & Lymphoma Society and other ways you can support this amazing cause, please visit www.lls.org.

leukemia and lymphoma society
[above] A drawing by Cameron Cyr.

leukemia and lymphoma society

leukemia and lymphoma society

leukemia and lymphoma society

leukemia and lymphoma society

This post was written by Jessica Woodbury